Charlie Gard's Family Friend Says Courts Didn't Give Parents A Chance
11 July, 2017, 00:09
The London court put a little more time on the clock Monday, giving Gard's parents until Wednesday afternoon to submit new evidence their son should receive experimental treatment that could save his life.
Our special thanks goes to everyone in America and everyone in Rome who has supported us and who believes that Charlie deserves this treatment as we believe he rightly does.
What is wrong with Charlie Gard? Charlie suffers from the genetic disorder mitochondrial depletion syndrome.
Although he appeared perfectly healthy when he was born, his health soon began to deteriorate. He is now on life support and unable to move his limbs or eat or breathe without assistance. His eyelids can not stay open and because of the weakness of the muscles, his eyes point in different directions and the damage to the brain will not allow his sight to develop.
His condition also means he is unable to breathe unaided, which is why he needs to be on a ventilator.
The battle for baby Charlie Gard's future is being decided here at London's high court.
Fighting back tears he said: "If he does have the treatment imagine the information you will get for the next few months for this treatment that's working really well for my son". "This is not an issue about money or resources, but absolutely about what is right for Charlie".
Charlie Gard'smother has urged judges to listen to the experts as she said an experimental treatment could be a "miracle" for her son. It has also been supported "unequivocally" by some of the world's most distinguished clinicians and scientists, GOSH previously said.
Doctors describe his condition as exceptionally rare, with catastrophic and irreversible brain damage.
"Two worldwide hospitals and their researchers have told us in the last 24 hours that they have new evidence about experimental treatment proposed by them".
But on Friday, it agreed to return to court.
Meanwhile, Conservative Woman writer Caroline Farrow said the claims of Charlie's parents are "not fundamentally outrageous or unreasonable". They appealed the case all the way up to the UK Supreme Court.
A judge is overseeing the latest round of litigation at a High Court hearing in London after "new" evidence was presented.
GOSH describes experimental nucleoside therapies as "unjustified" but its decision comes after two global hospitals and their researchers contacted them "as late as the last 24 hours" to say they have "fresh evidence about their proposed experimental treatment". "We are truly grateful to the High Court for its ruling [today]".
The therapy is a treatment, not a cure.
It has been used on some patients, but none with Charlie's type of MDDS. Theirs is caused by a slightly different gene. The faulty DNA means Charlie's cells can't easily make energy to power his muscles and brain. "The man is believed to have arm injuries but they are not life-threatening or life changing", the statement read. We are hoping that Chris Gard and Connie Yates, parents of Charlie Gard, will be able to join us. "Whether experimental therapy is still warranted depends on whether there remains any prospect of any meaningful life".
The couple have now asked a high court judge in London to carry out a fresh analysis of their case.
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