Friday, 20 October, 2017

Congressional committee approves amendment that would grant citizenship to Charlie Gard

Two international experts to attend meeting in Charlie Gard case Charlie Gard's mum at clinical meeting with US doctor
Bessie Robbins | 20 July, 2017, 00:27

They apparently failed to be persuaded by American neuroscientist Dr Michio Hirano, who flew back to NY last night.

He spent over five hours locked in discussions with Great Ormond Street Hospital staff before he flew back to the USA on Tuesday night.

Charlie's mother, Connie Yates, told the BBC.

Tensions also arose between GOSH doctors and Gard's parents over the size of the baby's head - an increase in brain size (which hospital measurements dispute but Yates insists her own measurements support) could indicate brain development. We are at his bedside and feel satisfied he is not suffering or in any pain. Chris Gard and Constance Yates, Gard's parents, lost their appeal at the European Court of Human Rights to take their son to the United States to receive experimental treatment.

The latest hearing follows the 11th-hour intervention by Dr Hirano and researchers in Italy and Spain who believe there is a 10 per cent chance Charlie will have improved muscle strength following experimental nucleoside therapy.

The therapy has never been tested on any human or animal. Hirano presented his expert opinion to the U.K. High Court July 13.

But that was before two brain scans that the 11-month-old had on Sunday, his first since April.

Doctors caring for Charlie at the London hospital unanimously agree that it would be best for him to have his ventilator withdrawn and allowed to die, according to the hospital.

Doctors at the Great Ormond Street Hospital, where Gard is on life support, maintain that Gard's condition can not be improved and insist that he be denied Hirano's treatment and taken off life support.

Two international experts to attend meeting in Charlie Gard case
US expert 'fails to get Charlie Gard's doctors to reconsider': Neuroscientist is unable to talk round medics as critcally ill baby's parents release new photo in response to claims he is blind

Hirano traveled to London to examine Charlie and meet with his doctors and other members of the medical team on Monday and Tuesday.

Results of the tests and evaluations have not been released and more tests are scheduled.

Ahead of the meeting, Great Ormond Street said Ms Yates' contribution would be welcome and would be supported by the chair who could introduce her questions and ensure adequate time is offered to respond. It started at 7.30am and lasted until 1pm.

Mr Justice Francis is due to read a transcript of the meeting at Gosh before the next hearing, likely to be this Friday.

Charlie's parents have been in a four-month legal battle over their rights as parents to determine the type of treatments their son can have. His condition means his lungs are too weak to function by themselves.

Now police can be called into arrest the parents if doctors believe they will cause suffering to their child.

The High Court has said it would be kindest to let him "slip away".

Last week tensions hit boiling point between his parents and lawmakers as they stormed out of court claiming they had been "stripped of their rights".

The case gained global attention after interventions by U.S. President Donald Trump and Pope Francis, who have both voiced support for Charlie.

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